The World Federation of Hemophilia (WFH) has raised concerns over the low number of diagnosed hemophilia cases in Zambia, with current statistics indicating that fewer than 300 people have been officially diagnosed with the condition.
According to WFH Chairperson, Charity Pikiti, many individuals suffering from hemophilia in Zambia continue to face significant challenges, primarily due to limited access to healthcare and diagnostic facilities.
Speaking at a press briefing ahead of World Hemophilia Day, Pikiti emphasized the importance of increased awareness and better healthcare infrastructure to support those affected by the disorder. “The lack of proper diagnosis and healthcare services means that many individuals with hemophilia are suffering in silence, without the necessary treatment and support,” she stated.
Hemophilia, a rare genetic disorder that impairs the blood’s ability to clot, can lead to spontaneous bleeding and prolonged bleeding episodes. Without proper treatment, individuals with hemophilia are at risk of serious health complications.
Ms. Pikiti also highlighted the issue of the high cost of medication, which is another barrier for many patients. “The medication required to manage hemophilia is expensive, and this puts it out of reach for a large number of those affected,” she said, urging the government to ensure that life-saving drugs for hemophilia are made more accessible to the public.
The WFH continues to advocate for greater support and resources for people with hemophilia globally, and this year, as the world marks Hemophilia Day, the federation is calling on governments, healthcare systems, and communities to address the gaps in care for those living with the condition.
The WFH also appealed to the Zambian government to prioritize healthcare reforms and ensure that essential medications and diagnostic services for hemophilia patients are affordable and easily accessible.
Pikiti’s message underscores the urgent need for a collective effort in ensuring that individuals with hemophilia receive the care and treatment they deserve, as well as raising awareness about the disorder in communities across Zambia.
